As I mentioned, Lynn and I couldn't have a wedding because our combined income might make her ineligible for the insurance that would cover her treatment.

Okay, so this speaks to just how madly in love with Lynn I was. Anything happening to her was terrifying. I had asked her to marry me, given her a ring, and committed myself to her forever. But without a wedding or a "legal" marriage.

We even tried going to the Catholic church to get married but without a marriage certificate and they would not allow that. The fact that we didn't have a wedding didn't change anything.

If you are thinking that I imagined getting married to someone else someday, the answer is NO! I had found the one for me! Lynn. So, my commitment to Lynn was forever.

Let this all sink in for a moment. We were in a rush with time hoping that they find a cure for Cystic Fibrosis - a genetic illness - so that she would live past her fifties. That's what I needed!

Treatment can cost several thousand dollars per year during good years. Even her mother could not afford that.

What do I mean by a "bad year?" And what was it like in general, even during good years?

Occasionally, she would use an inhaler but that didn't seem to happen very frequently.

I drove her or we drove together to her clinic appointments in Chapel Hill. From Wilmington, that was a drive of over two hours. It happened for the most part only once a year.

They would check her oxygen saturation... take X-rays to see the scarring and the buildup of mucus in her chest.

Lynn was good about letting me sit in on every meeting, such as when she was taken to a room to be examined by first a nurse and then a doctor.

Most of the time we were very lucky because she was so very healthy for someone with this very serious and debilitating disease.

I might have turned away or left a room when they wanted to collect a mucus sample. Lynn understood that I had a weak stomach.

Anyway, so much of this was becoming routine. Most of the time.

I asked so many questions all the time. "What is that dark spot in her chest area that you described in the X-Ray? Is that mucus or scarring?"

The doctor would answer, "well, here is some excess mucus that needs to be cleared, and here is some scarring?"

"Wait how do we clear that mucus?" I asked.

"Have you learned how to do the tapping?" the doctor asked.

"Yes, we learned about that from the physical therapist." I answered, adding a question "but it's still worrisome?"

Then I asked, "What about that device that she is supposed to wear, is that better?"

"Not necessarily," the doctor answered.

Then Lynn said, "it doesn't clear it out for me, I can tell it's still there." Then she turned to me and said, "I told you about the problems and asked for your help the other day."

I felt so guilty. "Oh, my God, Lynn, I am so sorry." Adding, "it's scary for me. I know you need me and I'm trying. I'm scared when you are not well. That makes me feel guilty because I should be there for you... but I get sad and scared about the meaning of these problems."

I paused and added with tears running down my face, "I want a 'normal life' ... and if anything happens to you... I just love you so much, you make me feel good and happy. I can't imagine not having you with me."

"I know sweetie, I have had more time to deal with this," she said.

"Okay, so I still have a lot of questions," I said.

"Okay, ask away," answered Lynn with a smile that said she knew I really cared.

Then turning to the doctor, I said, "so, how often and for how long should I do the tapping to clear up the mucus as it builds up?"

"Well, about 15 to 30 minutes at a time in the evening would be good," answered the doctor.

"And the scarring, that looks big, what..." I could barely get my words out I was so full of anxiety and sadness... trying hard to be strong for Lynn.

It is SO MUCH easier to do this with clients or patients at a psych hospital.

Dear reader, I hope that is somewhat intuitive but maybe I shouldn't assume. I wasn't in love with my clients or the patients I served. We weren't sharing our lives together. They were not in love with me either. At least I hope not – that's another issue for later.

My blood runs cold when I think of this as it did at the time. It's interesting how similar sensations can feel so different. When we were at the clinic discussing these matters, I could feel chills running through me... not the kind that I felt at the touch of Lynn's hand or her lips on mine.

I was, for the most part, able to push these issues out of my mind and not think about the reality of it. But on these visits, we had to look at this darkness in our life. Scarring and mucus appeared as dark patches on the X-Ray of her lungs.

In answer to the question I posed about the scarring, the doctor said, "her lungs still have a capacity to breathe and get enough oxygen to function in many normal activities."

During the visits, I would learn about how the scarring makes the lungs less elastic and that makes it harder for them to expand and get enough air to engage in certain activities that we take for granted... running, hiking, or walking long distances. And scars don't heal.

So, even if they had a cure that doesn't mean that everything would be fine.

There was a time in late 1996 when Lynn had to go into the hospital. Her lung functioning had gotten poorer or weaker and they wanted to put her on IV antibiotics in the hospital.

The doctor had explained that they wanted to go after the infections in her lungs. They had to try some of the latest antibiotics that were thought to be more effective in people with Cystic Fibrosis (CF). They were always learning new things about the disease and people were living longer.

It was scary for both of us. Waiting there in the lobby of the hospital I tried to stay positive and tell myself that things would be okay.

Then she was brought to an inpatient unit that was used for treating individuals with CF.

When Lynn asked me to get her something from downstairs – a drink and a candy bar – I was somewhat glad to have that opportunity. I was struggling to stay still. That's how anxious I was. I had a strong urge to walk. I couldn't sit still hardly. I was also sick to my stomach. That's what happens when I am anxious or scared. I felt queasy or nauseous.

I held her hand as they inserted the IV. I asked the nurse "what is that?" referring to the fluid that was being introduced into her IV.

"This is just saline solution," she answered... adding, "the doctor will give us an order to tell us which medications to give her."

I was sitting on the bed looking at Lynn. No words were spoken for a few moments.

"Do you want a book, or to play cards?" I asked, "or how can we pass the time?"

Lynn asked for a book by Anne McCaffery, one of her newest books that she had not read.

"I want to stay with you," I said.

"I understand," she answered. "I am glad you are with me."

"Me too."

I added, "I can just be reading something too with you."

"Okay, that sounds good."

"You can go meet my friend Carolyn," she said. This was a friend who also had CF and she lived in Chapel Hill.

"Yes, we will see her when you get out too," I said. "Before we go home.

Visiting hours don't usually allow people to stay all night. That night I was in bed next to Lynn, on her left. She was asleep with my arm resting on her stomach or her chest. I just wanted to feel her breathing. We made sure the IV was out of the way.

I heard the door open, and I looked up to see a nurse checking in. She didn't say anything.

This finally ended and she came home. Our life went back to normal.